Tuesday, February 1, 2011

SUPER BOWL and MS update


I made it to 3PM yesterday!
That was it! That was all I could handle. I took my nightly meds and went to bed!
I emailed Jack and told him that I was going to bed and that he could try and wake me to see if I wanted to get up when he got home. He did not bother.

I got up at 4:30AM It is now 6AM and Jack just left for work just a bit ago. I hate of all day TODAY that he had to go to work. I also know some days he hates leaving me. But someone has to work right?!?!

My MRI is coming up and it will be nice to know what is causing all this havoc inside of my body! It will let me know if I am just having a flare or if I have new lesions or what is going on!
My MRI is on Friday morning really early. I get heavily sedated because I am so claustrophobic. So I have to go to the OR department at 7AM. So it will be an early morning for us! We live an hour away!
It is one of those things where you want to know what is going on. But then again you really don't.
I have spoken to my neurologist and was told that I should go to the ER with the way that I am feeling.
But I have been there done that. I know exactly what happens from the time I get there to the time I leave and I just don't want to go through all of that right now. I would much rather just be in the comfort of my own home and wait to have my MRI done on Friday. If there is something to warrant me needing to be in the hospital then my neurologist will let me know.
So for now I am trying to manage my numbness as best as possible. If it was just pure being numb that is fine. Well not fine. That is when they actually want me in the hospital. It is this flippin pins and needles. It is like falling a sleep on your arm and it hurts so freakin bad. Well I have had that 24-7 and can't get rid of it. So the worst thing would be to go lay in a hospital bed and have nothing to do but sit and think about it. At least at home I can try and keep my mind off of it as much as possible. I do have breaks from it. It is starting to come in and out and that is a good thing. It is when it last for hours on end that I feel like I am going to lose my mind!
The numbness in my face seems to be much better today which is a good sign. This is complete numbness which is one to worry about.

I am still waiting on my Copaxone. Which is my daily shots. I am hoping I will feel much better. Jack seems to remember that when I was on them I did feel better so I hope that is the case.
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We are having family over for the Super Bowl this weekend. We have lived here for something like 8 months and most of my family has not been to our house. We live out about 45 minutes.So it is a drive fro some So we are going to have everyone over to watch the game and have dinner. My aunt was worried about if I was up to it or not and I love her for that ( ; But right now I can use all I can get to keep my mind off of all of what is going on!
I have the worlds best husband so he will help me make dinner.Plus what I am making I can make most of the day before. Then I can just sit and visit with my family. I am going to make the chicken soft tacos that I posted on my blog a few days ago. They are so good and on my healthy eating plan.
So...I am looking forward to having the family over!!!!
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I am still waiting for my stuff that I ordered from netrition. I guess I am not suppose to get it until Thursday which sucks!!!
But I am doing good with my eating.
I have NOT pushed my working out. I know I should at least be walking on the treadmill. I will do that today. Even if it is at  1.0..I need to be walking!!! I have no excuses there!!
The other night when I had done floor exercises I had woke the next morning I felt nothing.So I was like OK I guess I need to more reps. Well I did not do anything that night and woke the next morning really sore. It had a delayed effect. The next day after that I was even more sore! So I am going to keep doing what I was doing. They were just basic floor exercises. I will try and use my laptop webcam and see if I can do a short video and show you what I was doing.

Well it's only 7AM and I have had 2 oranges and 2 bottles of water!
I think I am going to drink a lot of water today!

6 comments:

  1. Take care of yourself. Hope you enjoy the super bowl party :)

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  2. I just want to give you a big hug for all you go through every day. Im glad you are excited to have family over for the super bowl and dinner!!

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  3. I'm so sorry that your feeling so bad!
    Hopefully the MRI will give you some answers.

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  4. Crossing my fingers for a good MRI. Hopefully its just a flare with the weird weather changes... hot then cold then hot...

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  5. I'm right there with you on avoiding the ER-usually a total waste of time resulting in me being more tired and run down then when I went there. I hope you are feeling better soon, and can get some good answers!

    Polar's Mom
    www.polarspage.blogspot.com

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  6. I'm sending a TON of prayers your way over the MRI! I hope you get the answers you're needing. Hugs and love to you, my friend!

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