Around the time I was diagnosed with Multiple Sclerosis I started having seizures in my sleep.
These were a different type of seizure. I was aware of them. Most of them would happen when I was drifting off to sleep.
The best way that I can explain it is a feeling of falling. During this feeling of falling I am a bit aware of my surrounding but I have no control of what happens. I have hallucinations but there can also be things going on around me that is also very real.
Many times I recall reaching out for Jack for him to pull me out of this and my arm or hand would feel like it weighed a thousand pounds. I could feel myself jerking or feel my dogs licking my face and not be able to do anything about it..It is really scary.
As soon as I am able to bring myself out of it if I I don't sit up immediately I will drift right back into it and this can be hard since I am really groggy when I come out of one.
It has been a while since I had my last one maybe 6-8 months..
I was recently put on a new medication called Topamax. This medication SHOULD help with these..
Well this morning..I had another one..This was one the most scary ones I think I have EVER had!
They are kinda like dreams..Once you have them and times passes you tend to forget about them. jack says that the one I had 6 months ago was pretty bad as well but of course I don't remember it as he does.
I woke up with someone YOUNG calling my name but it was my nickname(naynay) over and over and I felt like they were giving me a shot in the neck. But it did not hurt. It was just a sense of knowing that they were doing it. So clearly this was the dreamy/hallucinate end of it. The worst part is...I was SUFFOCATTING!!!! I could not breathe.This time was short. I manged to come to pretty fast. But went back in really fast. I was laying on my back with one foot planted on the bed. Same thing my name was called out and I was being suffocated. I was swinging my leg back and forth trying to keep myself from falling..That is what I call it..Since that is how it feels. The strangest thing. The dogs were around me. I could see Bella and she was barking but I could not hear her. At one point she even crawled on my chest. I was panicking..I could not breath!! When I finally came to which seemed like forever I sat up really fast. My throat was really dry and hurt. My arms and hands were numb. My lips were numb and dry. My mouth was dry. 30 minutes later my hands are still tingly..THAT WAS SCARY!!!!! I feel like I could have died in my sleep!
I had wrote a lot of this same thing to my husband and he is coming home..Just in case I fall a sleep..I questioned if I should have emailed him. 10 minutes later he texted me that he was on his way home!
I clearly need to get back into see a new doc or get back into see my now neurologist and find out if I need to switch my meds. Jack is gonna call when he gets home!
It was a scary morning to say the least!
Like I have said in he past THIS IS MY JOURNAL...By writing this down it gives me the opportunity to remember it! To me these are like dreams.As time passes..I forget them. Jack says the one six months ago was really bad as well but I don't remember. If I don't remember them then how do I explain them to my docs??? This is a great way!!!
SEEING THE DOC THIS AFTERNOON!!!
Yesterdays calories 1553..I did good till I had toast in the middle of the night..Still a good day though!